Monthly Archives: February 2014

I didn’t finish…

I have to admit that while I am a Summer Olympic Games fanatic, the Winter Olympic Games definitely have a few personal highlights: figure skating, luge, curling (which was never aired this year at normal hours; I could never get myself out of bed at 3:30am to watch the event…sad) and a new fascination for Slopestyle skiing. Not being naturally talented at any of these, or any other events for that matter, my most common response while watching the performances went as such: “That’s INSANE!” Yes, pretty much insane, but this is what these athletes train for–the dream, the passion, the Olympic moment.

During these games, I realized that I sympathized with the athletes who had a hard time performing in their events–not being able to land their jumps and twists, coming in a split second short of being on the medal podium, the emotions of personal background stories of their own family losses…these moments remind you that even the greatest athletes are human. And while there were many memorable moments to celebrate in outstanding performance victories, I believe the greatest victories were evident from the athletes who struggled. They fell down, yet picked themselves up to finish their performance. It showed true determination. True victory.

I was most impressed by the figure skating performances. Now, I have a hard enough time standing and balancing on my own two feet as it is…so if shoes consist of having attached blades, wheels or anything that causes movement–such as skis or snowboards–I don’t touch them. But this was not always the case. Growing up, I did enjoy skiing (I learned to ski at age six and skied through high school years), a little snowboarding (until mid-college days when my balance turned for worse), rollerblading, ice skating (we had a frozen pond out in the back field or we used the ditch across the road), and roller skating (except the last memory, in which I took a fall at the YMCA center leaving me unable to get up on my own and a trip to the ER: thus, it confirmed that my days of moving feet business were over!)

ice skating

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Being somewhat a helpless romantic when it comes to either ballet or figure skating–and maybe combination that this Olympics, due to deafness, I couldn’t hear the figure skating music–I started to think of songs that I would perform my routines to in the event that I was a figure skater. For a short program, because judges score on technical activity, I thought fun songs, such as “I have Confidence” from the Sound of Music or “Linus and Lucy” from The Peanuts would be lively. And the long, free skate program: “Moonlight Sonata” by Beethoven! It is a deep emotional song…a performance could be so lavishing.

I did perform “Moonlight Sonata” my senior year of high school; not in a free skate performance, but for my senior piano recital. I had been playing piano since the first grade. I had memorized pieces of Bach and Beethoven in the past, but “Moonlight Sonata” was my last. I memorized the music, practiced until I felt secure in the music, and set out for my performance. I am not one for audiences. I tried to calm my nerves. The piano faced the wall. I was staring in white. I started to play with shaking hands.  “Moonlight Sonata ” is not a fast tempo music. It is a slow tempo…deep emotions. I let my mind wander for a split second in which I lost my concentration. My mind went as blank and white as the wall I faced.

I stop and turn to the audience. “I need to start over.” I get nice reassuring smiles. By now I cannot get my mind and thoughts to relax. I restart the piece, but struggle in mid-way…again my mind goes blank. I feel a flush flow to my face turning my cheeks red and stinging tears about to drop from my eyes. To avoid crying on stage, I simply get up from the bench, take a slight bow, and return to my seat. My dad whispers, “Don’t cry. They are going to take group pictures,” and gently puts his arm around my shoulders. Too late. Tears abound. No one mentioned my performance. People understood. But I held it against myself: I didn’t finish.

There are days when I ask God how I am to finish the task set before me, when I feel as if my physical body simply is just staring into a blank white wall. Circumstances seem too difficult, uncertainties leave room for doubts and questions of my abilities. I still struggle with wanting to be doing bigger things, but was reminded graciously that if I am faithful in the small, God will reward with more when I am ready. Olympians are not made overnight. They train in the small daily tasks for years…with the reward of a bigger performance than they ever imagined.

The most important thing in the Olympic Games is not winning but taking part; the essential thing in life is not conquering but fighting well.

~Pierre Coubertin, founder of the International Olympic Committee; “Father of modern Olympic Games.”

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Weekend Projects

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My painting table starts off with one painting.

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I have left over paint.

I grab another white canvas from the shelf.

Another painting to the table.

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Ideas emerge.

Creativity enlightens.

Another canvas is added to the table.

Paint starts to dry.

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Details take the completing stages.

As the glue dries, the paintings are nearing the end of another artistic session.

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My painting table is now empty.

It is ready for a new weekend.

A new white canvas full of possibilities.

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Lifeline

Yesterday morning, I spent two hours at the hair salon getting my perm redone. For the amount of time taken, the result looks lovely (and bonus points to me as having no sense of smell fully pays off in these instances.) Nearing the end, I had twenty minutes of waiting, during which the solution needed to soak into my hair with the curlers still set in place before my stylist removed them. I asked the lady sitting next to me if she could pass me a People magazine…just something to glance at as I waited. “Pointless readings,” I tell myself, but I didn’t read much anyway as I didn’t have my glasses on at that moment.

I did happen to find one good article about a girl my age who lives with Down Syndrome. As I skimmed the blurry article, I was impressed by her courage not to let the disease define her; she had even gone to court to declare her independence rights on choosing where to live. I don’t know her name or the edition of the People Magazine for quotes, but I do remember reading a few sentences where she states that she is an independent person–she just might need a little help sometimes. I had two thoughts: First, I fully relate to what she is saying. She and I may struggle with vastly different physical limitations, but there is a common understanding both in emotional and mental thoughts of what it means for independent living. And second, whether you struggle physically or not, don’t we all have moments where we might just need a little help? It is our human nature; it keeps us humble.

When I first moved back in my parent’s house, I thought I was losing all independence. It took time for me to process that I never lost my independence; living at home ensures that I can live independently. Yet, I am surrounded by family who can help if I just might need it: opening zip lock bags or medicine bottles if Walgreens places the lids in the wrong direction; putting on my compression stocking or clipping my toe nails; carrying my groceries up the stairs or my full laundry basket to the washer. Or in the event that I have car problems, need to get Muffy’s food from the patio but it is dark outside, I accidentally break a dish while loading/unloading the dishwasher…help is there as well. It is safe independent living.

hermie “I’m…independent!” (samefacts.com)

To maintain continual safe independence–while at home–I now wear a Lifeline necklace. Wearing this necklace does not change any part of how I currently live. I still get up in the mornings on my own; bathe and dress on my own; make myself meals and, of course, the morning pot of coffee; I can still write (chicken scratches), type (finger poke), text, and paint; I still climb up and down the stairs, even if it is a slow one-step-at-a-time; and, I still drive, run errands or go to church on my own as long as I have the energy and weather permits me to do so.  The Lifeline’s purpose is to inform others if I needed help–the communication is accurate and efficient. The necklace works only at my home (garage, basement too) and outside property. Once I leave the driveway, I am too far from the sensor for any signals to send.  However, being out in public, my chances of being all alone are quite slim. 😉

When we first set the Lifeline in place, I was confused as to how I, personally, talk with the personnel over the communicator (set up in my parents room) as I am Deaf. I really do nothing, except push the button on my necklace if I need assistance. The personnel from Lifeline contacts my parents through the communicator and notifies them that my button was pressed, so they can check on me. If no one answers that machine call, they immediately start calling my emergency contact numbers in order; my mom’s cell phone is first, etc. In the case I fall and I am unresponsive, the sensor on my necklace cues in on this and Lifeline automatically sends emergency medical help. It is safe independent living.

Lifeline is unlike a regular 911 emergency contact. It doesn’t have to take a catastrophe of epic proportions for me to push my button for assistance. It can be something even as simple as accidentally breaking glassware while doing the dishes and not being able to safely step away from the glass; if Mom is outside working in her garden, how would she know I needed help? The necklace is also waterproof, so I wear it in the shower. It is only by God’s goodness and perfect timing that my parents were still at home on that Sunday morning when the first blood clot hit as I was in the shower. Because I was hyperventilating and had my left arm slung through the handle on the shower wall in order to stand up straight, the only way I could contact for help was to bang my right fist against the shower wall. At that time, I didn’t even think it was being heard. After a few solid bangs, my mom finally decided to check in on me. You can see the importance of having this in place as I continue to live independently.

Although Lifeline is often aimed in advertising for the elderly, I know for myself–and the family–wearing the necklace puts ease in the mind of constant “What if’s?” It reminds me of my times in prayer. I don’t have to wait for epic catastrophes in order to present my requests to God. Prayer replaces the “What if’s?” with constant peace.

The Lord is my chosen portion and my cup;
you hold my lot.
The lines have fallen for me in pleasant places;
indeed, I have a beautiful inheritance.

Psalm 16:5-6 ESV

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Morning Gilds New Light

I forgot what it was like to enjoy the simple blessings of being a morning person:

Until today; I was up at the awakening dawn.

I pull back the darkened shades in my room.

The sky smiled as it stretched wide arms of light.

“Good morning!” it shouted with radiance.

Pictures are never justice to the moment.

So I stood out on the patio in full wonder of the beauty.

Back inside, I filled my cup with coffee.

I squinted as the sun gleamed in transparent window glass.

“Good morning!” I reply.

Your love, oh Lord
Reaches to the heavens
Your faithfulness stretches to the sky

Psalm 36:5 NIV

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Read to Re-read

Reading is an easy topic for me to discuss. Why? Because I love books; libraries; reading book reviews on other blogger’s websites and spending quality time writing my own; and of course, sharing: both what I have learned and what I consider a favorable or unfavorable read. I have a list of “to-reads” that never seems to end, because I continually find or hear about another book–the list goes on and I slowly mark a few as “read.” On GoodReads, you can make your lists and mark the books accordingly. I even have a shelf titled, “Abandoned;” there are some books you should never force yourself to finish.

However, there are others that are worth a re-read. I am not a person to re-read. In wanting to read all the books of my never-ending “to read” list, I don’t take time to go back and enjoy the books I have already claimed as a favorable good read. In fact, they sit on my bookshelf, collecting dust.

It was only about a month ago that the topic of favorite childhood books was posted on Facebook in a discussion forum for a closed group gathering of We Heart Books: a virtual book exchange. My cousin had mentioned this event back at Christmas, but I completely forgot about it until the week of the last sign up dates. Spontaneous decision, but I was really eager to participate. I filled out my own information sheet of what I like in books–genres, titles I have read or own, authors I don’t enjoy, and a wish list. After submitting my form, I was paired with Micaela from Everyday Encouragements.  We shared some same book genre interests, such as historical fiction, and chatted a few times over email. A few weeks later, I received my surprise book in the mail: Evidence Not Seen: A Woman’s Miraculous Faith in the Jungles of World War IIby Darlene Deibler Rose. It was on my wish list and after just finishing Jamie Ford’s, Hotel on the Corner of Bitter and SweetI am very excited to read this book! I have always been a history fanatic, but this past month, I read a few historical fiction and non-fiction books about our country’s past events. Because I had just finished Peter Leavell’s debut book, Gideon’s CallI was too excited NOT to share–so this is what I sent Micaela.

A few days ago, I had a Skype conversation with my sister. We got on the topic of books and she mentioned two tiles that she was going to re-read. Books she hadn’t read since school days. When we ended, I went to my room and started rummaging in my book basket and bookshelf, mentally taking note of favorite books from the past. It was time. It is a personal new reading goal to read one “re-read” each month. Being the month of February, I chose The Great Gatsby by F. Scott Fitzgerald. A classic American romance. 🙂 I haven’t read this since my sophomore year in high school. Although I know the main plot, in essence, it will be a fun, refreshing read.

Yesterday I finished 66 Love Letters: A Conversation with God that Invites You into His Story by Dr. Larry Crabb. There was no purposeful plan in ending on Valentne’s Day–it just happened. Having read all previous 65 love letter chapters, I found myself somewhat distracted in thought as I opened to the 66th: Revelation. I was excited to conclude, yet almost wishing not. Even though this book was written as a first person conversation between Crabb and God, it was almost as if I sat there at the table with them…listening and taking notes. After finishing both the book and the rest of my coffee, I set out to write a short synopsis of my review on Goodreads. My closing paragraph follows:

The book took me back to the Scriptures…especially in the Old Testament. I could relate to Dr. Crabb in some areas of confusion and frustration, but I continually re-read God’s hopeful message: Trust Him. He has a plan. Life will be hard, but the eternal party has already started and soon I will dance. Until then, persevere in steadfast faith. And Love like Jesus.

I have to be honest…some of the conversations, especially about the Old Testament love letters, had me feeling a bit embarrassed, as my memory of these passages of Scripture were blank. As I ventured back and stated re-reading a few, such as Exodus and Habakkuk, it was as if I were reading it for the first time, yet it was clear and the deeper message of God’s story made sense. This has happened before and I think it is what I love most about the Word: it “is living and active, sharper than any two-edged sword, piercing to the division of soul and of spirit, of joints and of marrow, and discerning the thoughts and intentions of the heart.” (Hebrews 4:12)

It’s the best book you could ever read to re-read.

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Happy Valentine’s Day

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“Go after a life of love as if your life depended on it—because it does.”

I Corinthians 14:1 MSG

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Today’s expectations

I expected it to be an early morning: 5am, it was.
I expected the coffee machine at Children’s to boost my morning energy: the new machine was broken. 8am, no coffee.
I expected the appointments to discuss the main issues–balance, intestines and overall function–with a long list of things that can help for “future” changes: it did, but without the long list.
I expected my MRI results to come back reporting “stable” conditions, even though I have still experienced  some physical changes, like numbness in the right hand: it did and I am thankful for no tumor growth.
I expected my doctor to want an MRI in another 4 months: he didn’t and left the choice to me. Next MRI is planned for mid-August (6 whole months!) 🙂
I expected all my questions to be answered: they were, along with much great conversation.
I expected to leave by lunch: 12pm, we did.
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Life is often lived in arrays of expectations. A day like today shines bright and hopeful; other days, the expectations fall into shadows of despair. And what of the expectations I hold for myself? I often feel the “need to perform” or “prove” to doctors that I am still doing my best possible. And though I did not struggle much with that today, there were still moments. And what of the Great Physician? Why do I feel the need to prove myself to God physically? He knows my body is broken. And he heals: maybe not in the ways I expect, but always in hope.

The hope of the righteous brings joy, but the expectation of the wicked will perish. ~Proverbs 10:28 ESV

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Carried in Love

“It happens every time,” I say in tears with a mouthful of a Fiber One bar. I take a drink of my re-heated coffee, then continue, “I do so well; then the week before my doctor appointments, I just don’t!” Of course, I also state in frustration that I think it’s a conspiracy. I am not sure what the case is (definitely not a conspiracy), but this situation does seem to happen most often around doctor appointments.  Maybe it’s just ironic.

This morning was like any other Sunday: a rush getting ready, downing a small breakfast amid hoping to leave on time, but still needing to put on my socks and boots. In my hurriedness coming out of my room, carrying my winter coat and boots, my right leg locks at the knee as I round the corner in which throws me off-balance. I tumble-down backwards, dropping everything and hit my head on the floor. My parents were still here, and within a minute of falling, Dad came to the hallway and assisted in picking me up off the floor.

Just a few days earlier, I spent a whole day conquering my file box! (Also termed: The Twilight Zone!) After hours of organizing and sorting, the results are rewarding. All that was left to accomplish was shredding a stack of old bank statements. Dad un-jammed my shredder and I started happily shredding away! As it starts to fill, the shredder gets a slower speed and makes noises (unknown to me.) Dad comes in and tries to tell me this, but I defend my shredder saying it is able to shred up to so many pages and that it is just full. Not really implying that I need help emptying the bin, Dad makes his way to help me anyway. Sitting on a stool, I start to stand to get out of his way, but result in slipping…knocking the stool over, I too stumble backwards. It was like a crash-landing. I have never hit the floor backwards so hard ever before, and in a moment, I was in the worst pain and instant tears. But Dad was there, and helped pick me up.

As he helped me get comfortable on the couch, I started to feel bad for bickering in justification the few minutes before the fall. Seemed so silly; and Dad finished shredding my papers. This morning, after finally getting my boots on, I realize that I probably shouldn’t drive in the snow that was piling down. I text Dad and tell him I am just going to stay put, safe and sound. “After all that,” I mumble as I go ahead and just brew a new pot of coffee. But I am glad I stayed. My morning readings brought me to ponder God’s unfailing Love, as I thought about my Dad having been by my side after each fall. Truth: Dad won’t always be there, but God is ever-present in times of trouble. (Psalm 46:1)

Missy [his daughter] could fall down and hurt herself, even if I’m walking right there beside her. That doesn’t mean that I allowed it to happen. She knows, as far as unconditional love, I’ll pick her up and I’ll carry her. I’ll try to heal her. I’ll cry when she cries. And I’ll rejoice when she is well. In all the moments of my life, God has been right there beside me. The truth of God’s love is not that he allows bad things to happen. It’s His promise that he’ll be there with us when they do.

–Clark’s response to Marty’s question: Why does God allows bad things to happen to decent people?

Love Comes Softly. 2003. Based on the book by Janette Oke.

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Moving Forward

Today was my MRI. You have to understand why I thought it was kind of a big deal: for the past four months, I have had but only one small and local doctor appointment. That’s it. 🙂 Can’t you see how joyous this is?

While I was getting ready, I did some thinking: The past four months of living without having to think of myself all the time has been the most rewarding experience–unlike during chemo when I had at least two appointments every week, plus specific times for taking chemo, and still, log every detail for doctors and research team. Chemo was not helping me. It was controlling me and after much prayer, I decided to end. I know this is not a situation or conclusion that other chemo patients can decide. But this was, and still is, my final decision. I truly am thankful and appreciative of all the care that is put towards my condition and know that it is always available to me when help is needed.

Since then, I cannot deny that I have painfully embraced this fact that my physical body could indeed change drastically, causing me to become fully dependent on others for my needs. It is not easy to comprehend. But isn’t that faith–surrendering fully to God, dependent on Him to meet my every need? I am nothing without His strength; I can’t deny it. Doctors look at my scans and compare what they see evolving inside verses my body’s functions and performance on the outside. The contrast should be labeled as “impossible,” but that is not a word in God’s vocabulary. Possible: I know that it’s true when I get out of bed each morning.

I am a living; As I see now, there is only one direction in which I can continue regardless of MRI scan results–and that is forward.

I came that they may have life and have it abundantly. ~John 10:10b

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Thoughts on Paper

I’ve been a bit distracted lately. Not in a bad way, it just seems to be that I would rather have my nose in a book than anything else. After finishing a few chapters at breakfast, I got up to start the rest of my day–randomly, I laughed out loud as I pictured the scene from Disney’s Beauty and the Beast where Gaston is talking to Belle about having her nose in books…

Gaston: How can you read this? There’s no pictures!

Belle: Well, some people use their imagination.

Although books do cause my imagination to stir, most of what I read just enables me to think. Think deeply. I am not sure why I have taken a strong passion to reading so much over the past few months. The only “explainable” proposition I came up with in my mind a few days ago was that reading is a place where I hear everything. All the thoughts on paper: I don’t miss a word. There is no lack of communication, no frustrations in lip-reading, because I am in the conversation in reading the thoughts the author has penned on paper, like a conversation flowing.

Almost ironic as it sounds, becoming a more avid reader, I have seen myself emerge out of the “silent-reader-shell,” and start conversations about what I read, whether it is in person or through social media sites, such as Good Reads. So, I suppose the greatest question I have been asking is simply,”Where is this going?” This new passion of reading, sharing, learning, growing: It’s the start of something. The passion kindles–it’s exciting, and I am ready to discover more of what lies ahead.

Your word is a lamp to my feet and a light to my path. ~Psalm 119:105

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