Tag Archives: problems with hearing aids

Little Joys!

Have you ever stopped for a moment to listen to the water as it drips out of the faucet? What about the sound your sheets make when you ruffle them as you make your bed in the morning? The sound your fork or spoon makes against the dish; the taps your fingers make on the keys when you type; the brushstrokes when you paint on a canvas; the click of your eye shadow case as you finish getting reading in the morning; or the sound of pages turning as you read a book? Little joys!

Yesterday I got my hearing aids fixed! 😀 Funny is perception. It has only been a mere three weeks since they went from usable to unusable overnight. It seems much longer than that! The hearing aids currently are back to where I had them set before–I have them turned up all the way though, as we did not adjust any of the settings due to my last hearing test being in February. At that point in time, my left ear had gunky-dark fluid behind the ear drum and I received some medicine to see if that would clear out. I had my ears checked once and it seemed to be helping slowly. It was not until after the spring break that the tinnitus (insane ringing in both ears) became increasingly loud. So there is much difference in my hearing since February.

Changing the levels now seemed in wrong timing, because I have my MRI/hearing test next Thursday the 23rd. My regular doctor appointments are the following Thursday the 30th. As far as my hearing test goes, I am thinking my left ear has not improved any even if the gunky fluid is out from behind the ear drum. Even with my hearing aid in, I am not hearing much (though I placed it in first this morning and then shut the lid to the case and heard it clear as day…guess that is a good thing!) I do know, however, that I depend on my right ear/hearing aid the most. It used to be the opposite, but I can tell already that my hearing aids are helping…maybe n0t improving my balance but I have not run into as many walls today as I round the corner–little joys! And, after going three weeks with no hearing, I think I did improve my lip-reading and we started incorporating more sign language at home.

My dad is sneaky. He found this website where you can look up words you need and they give you a video of the sign. Last weekend, we had company and at Sunday’s lunch we had the typical tuna sandwiches, chips and salsa, carrots and grapes and cookies for dessert. I see my dad pull out his phone as the others at the table are in conversation. Not thinking anything of it, I return my attention back to lip-reading but sort of just sit in a daze. (I get bad at that. I stare like I am lip-reading but I am not paying attention at all in my mind! I need to work on staying focused!) Anyway, dad never waved for my attention or anything, he just moved his hands. I knew it was a sign, but since he did not mouth the word, I had no idea what it was. Instead of guessing or pointing aimlessly at the table, I just said, “I don’t know what that sign is.” It was grapes!!!

I should have remembered. I learned it in ASL I. Although dad was trying to be sneaky and not ruin the conversation at hand (I think I did 🙂 ), our table then erupted in sign–from discussion of ASL vs. ESL or SEE to guessing the word being signed (as my dad passed on his phone to my sister who put the website and my memory to good use!) Sometimes these conversations are awkward for me as I feel I should be the one to know all the signs (I don’t), but because our guests both had reference and previous experience to sign language, we were able to work through and remember words with sign together.

During these past three weeks, I now have experienced both sides of the spectrum in terms of hearing and hearing loss. Just the other day I read this quote. I think it sums up my thoughts the best way possible: “Heard melodies are sweet, but those unheard, are sweeter.” ~J0hn Keats.

I am happy to hear, thankful to hear, liking to hear…and I think it is because I had none–that I appreciate it more! Little J0ys!!

PS. This s0ng came to mind this morning:

Carolyn Arends, “I Can Hear You”

Leaky faucet dripping in the kitchen
Rubber squealing — watch out in the alley
Mr. Marley’s probably late for work again.
Birdie singing — telling me to get up
Such a soothing sound floating on the wind
I just keep listening

Funny how You speak to me
In such mysterious ways

Chorus:
I can hear You
I can hear You
It’s so amazing how Your voice keeps breaking through
I can hear You

There’s a church bell ringing out the hour
Like an old friend calling through my window
With the laughter of the children playing down below
You’ve got a way of getting my attention
In the rhythm of life, everywhere I go
Somehow You let me know

If I’ll only stop to listen
You’re in everything

I can hear You
I can hear You
I can hear You
I can hear You

Music video: http://www.youtube.com/watch?v=GtsWtNS-3Og

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Filed under Adjusting to NF2, Books and Movies, Family Times, Muffy, Paintings

Waiting for Spring.

Wrong will be right, when Aslan comes in sight,
At the sound of his roar, sorrows will be no more,
When he bares his teeth, winter meets its death,
And when he shakes his mane, we shall have spring again.*

I am sitting drinking a hot cup of plum tea, wearing a cozy sweater and my feet adorned with my slippers. The fireplace was just on and I think, “This is not spring-like weather.” Even today at lunch, snow frillies fell randomly from the sky and I said out loud, “Winter [has met] its death!!” Well, not quite. But slowly, it is changing.

This afternoon, I worked on sorting through my pictures from vacation. Some I have set out for cards and the rest I put in order and placed them in the photo album. The day we were at Grandfather Mountain, my mind thought of Narnia. It felt like winter…”Always winter but never Christmas.”* The hoarfrost on the trees, fog and gray skies just added to my imagination: This is what Narnia must have felt like.

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Winter in Narnia did not end overnight either. And while I am not waiting for magic to weaken, I do just have to be patient–spring will come.

Thinking these hopeful thoughts–I have good news!

I am finally able to wear my left hearing aid!!!! 🙂 For the first time in over a month! It still is not all the way back to normal, but I hear a little. The tunnel feeling is still there when I speak, but I turned the aid up to the highest setting–then put it into the second setting where the background noise is eliminated, and that helps. However, I do not think this is the best option–so I need to get in to have my hearing aid adjusted.

Since some of the fluid is out from behind the ear drum, now my ear is taking small steps back to where it was (I hope)! I have some fluid in my right ear as well, but so far have not noticed a change in hearing too much. The only thing is that I have extensive loud ringing noises all the time in my ears, and so I almost didn’t test the left ear yesterday. I had just changed my battery in the right hearing aid on Tuesday, and figured it would be a waste of a battery. But, I was wrong. I was instead filled with joy even at the smallest sounds.

Another praise is that I no longer have to go to the doctor’s office for weekly INRatio tests. INRatio is a small finger poke test that determines my blood count, due to being on the Warfarin blood thinners. I received my own home machine and kit on Friday and went through the training session. Monday’s test was an epic fail. The plan was to compare my home results with the doctor office results–I went and sat in the waiting room frustrated that morning. But not today! Because my blood count was high Monday, I had another test today. My INR was a success (thank you Mom for your help!) and my number matched the number at the doctor’s office. Now I am on my own!

While we were on spring break, I had a faxed order from my doctor for an INR test (just in case I needed one!) If I did, we would have had to find a medical facility to have the test done–which means registration, paperwork, waiting rooms–you get the point. Not something you want to do while on vacation! Having my own machine now will also eliminate this type of activity. The machine is not very big. I think my make-up bag is bigger, HAHA! So this is just one example I have thought of that makes having a personal INR machine a huge blessing!

On most days, spring may still seems a long way off. March seems to have come “in like a lion” but can’t decide whether it wants to leave “like a lamb.”

‘He’ll be coming and going,’ he had said. ‘One day you’ll see him and another you won’t. He doesn’t like being tied down–and of course he has other countries to attend to. It’s quite all right. He’ll often drop in. Only you mustn’t press him. He’s wild, you know. Not like a tame lion.’*

In whatever way winter leaves or spring comes, I am learning to find hope, joy and blessings in both the cold and warmer days.

*C.S. Lewis The Lion, The Witch, and The Wardrobe

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