Tag Archives: answered prayers

Road or Air?

Road trips. Yeah, I just laughed out loud at the memories. If I were an author, I could write children’s novels on the subject using my family’s experiences and adventures. As a family, we took many road trips especially in the younger years–even when Marcia was in a car seat. I don’t know how my parents survived.

My extended family circle is big. I am extremely blessed. When my Dad felt led by the Lord to move West (Colorado) for work, my parents made every effort to make certain that we kept in touch with all three sides of the family. Because of this, road trips took different directions: one year, we would go northeast states in a loop, squeezing in as many family/friends as we could in the short period of vacation time; the next vacation, we would go in the opposite direction doing the same pattern. Road trips also gave an opportunity to visit historical places and other tourism specialties in different cities.

In our suburban, there was this unwritten form of conduct for the seating. Because Melissa and I didn’t get carsick, we were always smashed in the backseat. Melissa’s long legs could only handle so much of the no leg room and for myself, my pet-peeve was not being able to hear the music. Literally the example: No one is talking, so I ask, “Can we turn up the music, please?” Mom turns up the volume. As I have now broke the silence, now everyone is talking or bickering between the middle/backseat–Mom turns down the music. Unfortunately, the only music we never wanted to ask to be turned up was Dad’s oldies. I finally learned to appreciate them (before I went deaf.)

Now, the backseat was responsible for getting the snacks, packed lunch or Dad’s Diet Pepsi from the cooler. Being efficient packers, the cooler always landed in the farthest back of the trunk, in which one had to unbuckle their seat belt to practically climb over the pillows and duffle bags to get in the box. Somehow, someone upfront was always hungry when the backseat persons were sleeping. The middle seat was responsible for the trash bag. I am not sure why this was a big deal, but most of the seat bickering was based on the trash bag, or the fact that they had controls for the air vents, their windows rolled down and they had the best seats when we played the Alphabet game (of course, Dad driving had the best seat of us all!)

When we started traveling by plane, I liked the convenience of getting to our destination quicker and always tried to act more mature when we sisters got to sit by ourselves apart from Mom and Dad. The only real code of conduct our family has for air travel is that we get to the airport a prompt two hours early to check in our luggage and get through security. Traveling the air was a breeze, until this time my ticket officially labeled me as a disabled passenger.

The disabled label does not have any real grasp on my mentality…it used to irritate me significantly, but now it is something that I have come to acknowledge. My disabilities are not always visible, which is why no one fully understands the amount of physical pains, pressures and problems that my body endures. I don’t blog about this subject–even though it is one of the biggest physical challenges I daily encounter–but to understand the significance of my fear for this flight, you must understand that like any other area in my body in which the tumors destroy the nerves–there is disaster in waiting. In this instance, it is my bowels. I have little to no control of them or their patterns. I often feel controlled in fear of having accidents; no 26-year-old should be having accidents, but it has happened. It’s humiliating.

So as I started preparing for the flight to Colorado, I felt fear take a strong grip over me and I asked a few close friends to join 1me in prayer about this–I needed peace. Our flight out left at 7am, so in code, we arrived to the airport around 5:15am for check-in and security. We checked in our two suitcases, as well as my walker. I was then pushed through security and only stood (Mom holding one of my arms to keep me balanced) when they performed the security pat-down. Passing the requirements, we headed to our gate.

You can tell that it was our first time traveling in this manner, because when we arrived at our gate, we said our thank you to the girl who pushed my chair and then she left to go help another wheeled chair passenger. When they joined us, Mom and I saw the lady tip the employee. As she left, I looked at Mom and she asked exactly what I was thinking: “Were we supposed to tip her?” We looked in our wallets and resolved to use what few dollars we had to tip any others that help in such a manner. 🙂

Being a disabled passenger flying Southwest airlines is sort of like having First-class seating. I was wheeled to the plane door, then helped to the seats…Mom and I decided just to sit the first row. There is a first time for everything. Still nervous for the flight, Mom gives me reassurance prep-talk and soon the plane is running down the airstrip. I remember take-off. Then sleep found me. We landed in Denver and I was one of the first few of the plane, once again pushed in a wheel chair to baggage claim, although this time they buckled me in…which I found quite hilarious! It made sense, however, once we rode on the concourse terminal train. I have never felt so much freedom at the sight of my walker waiting for me at baggage claim!

In both my flights, I had to completely surrender myself and trust in God’s protection. It was NOT easy! But I saw answered prayer; I lived answered prayer. On the last day of meeting friends, I had the chance to see my interpreter from CCU. We were discussing this flight story and I told her that I had been challenged by the experience. How often it is that I say the simple phrase, “I’m praying for you.” Then I forget or say it once quickly, then get busy and move on with life.

It humbles me to know that I have prayer warriors who daily lift up my name to God; they present my personal, detailed requests…as well as the need for comfort and strength. Prayer in my life, as of late, has seemed to be an unwritten code of conduct–very formal, lacking zeal. Like the Disciples (Luke 11:1-4), I often in question say, “Teach me to pray.” And I know He will answer.

The function of prayer is not to influence God, but rather to change the nature of the one who prays.

Soren Kierkegaard


Filed under Adjusting to NF2, Family Times, Funny Stories, Uncategorized

Surgery results.

I feel like lately a lot of my titles have been, “I’m Home!!!” Just to say it once more as an unofficial title, I am home!!! 😀 Actually, I have been home since last night. I got discharged around 3pm, and we got home around 5pm-ish. I am so thankful for that! I took a nap in the car and when we got home. I was to lay flat for the rest of the evening, so I ate a soup supper in bed and then ventured out to the couch to read for a bit before heading back to bed. Lots of sleeping. 😀 I feel much better today. They wanted me to get around normally doing things but still take it easy. I just have done things today like getting dressed, got myself breakfast/lunch, walked around from the kitchen to my room…and I also took another nap this afternoon. A pleasant day of recovery.

But now you are probably wondering how the surgery went. First, thanks for praying for peace about being put to sleep. Because I have a medi-port and told them again about being nervous/last experience, they decided that accessing my port and putting the anesthesia in my port would be faster in putting me to sleep. They were right! My parents came back with me to the hallway right where the surgery room is and they were there as they put in the anesthesia…and then I was just out. No going into the room, putting on the mask…nothing. I just went right to sleep right there in the hallway even before they pushed me into the room! A much better experience this time! I am thankful for that option and would choose it again if I ever had another surgery. They did have two other IV’s in my right arm, but they did not bug me and were taken out shortly after I woke up in the recovery section.

When I woke up, I was so confused…just typical after surgery groggy-ness. My parents came back and I asked, “I am done?” LOL. I was not in the recovery area for very long, and then headed home. Dad drew me a chart to explain things so I could understand…so I hope I can explain it to you so you can understand as well. The surgery went very well and it was still a good thing to have it done so we now understand what is going on. The most important things to know:

First, the Lovenox had already dissolved the new clot, so there was none to be taken out (which was a good thing). I will remain on the Lovenox until next week when I have my final whole day of seeing doctors (Jan 31st…my three-month check up with a round of different doctors). I also see the main doctor for the blood clot that day as well. Depending on what the doctor says, I may continue the shots for a while, but will most likely wean off the shots and take the Warfarin pill…for the rest of my life.

And second, they found that the clot from last year still had a large amount of the clot left. It is so hard and stuck in the vein, that the vein no longer is used. The artery was not the problem and since the vein is no longer being used, they did not put in a stent either. What they found was that my body had made new veins that branch from the left to the right across my back and that takes the blood around to the heart that way. They were happy to see that my body had already done this on its own. To be honest, I had NO idea that your body can make new veins! The more I learn about my body and what is happening on the inside, the more I am amazed at how God created our bodies in such detail!

There is always the risk that I can get another clot. Only God knows that and only He knows why I have had this clot…or even the last one. Doctors cannot pinpoint any answers and I don’t think we will ever know, but I am at peace about that too. I will most likely wear a compression stocking for a long while and will remain on the blood thinners (possibly) for life. It may help decrease that chance for another clot.

Right now, the back of my left leg is just a small wound. It is right behind my knee so bending it sometimes pinches, but I am walking more normal and put up my feet when I sit. I am not allowed to drive until Friday, but I get to shower tomorrow (glorious!). I feel getting back to normal routines will come quickly, but still going to take time to rest up and nap this week…as that is important too! It is snowy and cold outside, so it sort of gives me a good excuse to sit with a cup of tea and do some reading/rest anyway.

Thanks for all your prayers, emails, and texts! I am so overwhelmed at how our family has been wrapped around with love and support and prayers. 🙂


PS. I have been singing this song today:
“How Can I Keep from Singing” by Chris Tomlin


Filed under Adjusting to NF2, Family Times, Hospital Trips