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Home :)

Although last night might have not been our best evening. Mom got sick yesterday morning with a 24-hour stomach bug, so she spent the whole day at the hotel. Dad came in the early afternoon to the hospital to be there when we discussed surgery options with the interventional radiologist. I am also so thankful he was there to help me figure out the medicines as they sent me home on the blood thinner shots called Lovenox. I got discharged around six pm. By that time Dad was not feeling well, so thank you everyone for your prayers, because God protected us on the way home. I fell asleep and Mom was sick in the front seat, meaning Dad was on his own feeling sick yet having to drive an hour and half home. We had to stop by Walgreens in Xenia for more of my medicines, where Dad did get end up getting sick. So there I sat in the car with two sick people. Not our greatest evening. But we made it home.

My sister came over to help. I am so thankful for all she did last night and today: laundry, dishes, helped me put on my compression stocking and helped get my parents get their toast and ginger ale. Coming home would not have been so smooth without her here. 🙂 She helped me get my shots…my stomach is turning nice shades of blue again, but I think I toughened up from last year as the shots don’t sting as bad this time. 😀

Things seem pretty normal now. Had a great nights sleep in my own bed; did some reading today and took a nap; got a few things sorted out in my head (makes you feel like you are actually organizing)…but it is the little details about upcoming painting projects and the like (more to come on that!). I am now watching the Broncos vs. Ravens game (what a game!) and catching up on emails (thank you everyone for your prayers and encouragement.)

But there is still the lingering decision I have to make: to have the surgery to remove the clot/stent placement if needed or not. I have to make my decision by Monday. So as long as Mom and Dad are feeling better by tomorrow (they are doing much better than a few hours ago), we need to sit down and discuss things. It is like it should be an easy decision, but it is complicated. I lean in both directions for and against, but I want to make sure that my decision will be the best and most beneficial in the long run. Because in all truthfulness, I don’t want another blood clot. Even now, I see how God protected me. The clot went through my heart to my lung! I would have never guessed. I felt nothing.

In making my decision, I can’t guarantee that I won’t get another clot and neither can doctors…but I do want to have clear thoughts about steps that could be possible measures to helping prevent another one. If that makes sense. My thoughts keep going round in circles. So more prayer is needed as I desire to have peace about the decision. Thank you all for your continued prayers, support, love and encouragement. It means so much to me and my family. I will keep you posted in the days ahead.


Filed under Adjusting to NF2, Family Times, Hospital Trips

My new droids.

Howdy. If you are eagerly awaiting the news of my hearing aids–this post is for you! The past few days have been interesting. I am in the process of retraining my brain to hear noise. Cool. And yet sometimes my first reaction is, “This is annoying!” Noise, noise, noise. I feel like the Grinch who hears the noise of Christmas below down in Whoville. 😉 There are exciting noises: I can hear myself breathe. I sound like Darth Vader. 😎 I can hear Muffy meow, purr and chew his food…which I thought was a frog at first. I hear better on the phone, but will still use Sprintcaptel. I have been trying to listen outside for birds, but I have not heard any yet. Communication is better, but that is part of the hardest retraining of the brain. My parents voices sound the same. I can hear the car engine tick…sort of annoying. I can also hear when the refrigerator comes on. When I text or type, I can hear the keys being pushed. And church echoed this morning, so I actually had to turn my hearing aids down. These are just a few things I have noticed. I was told that it will take 3-6 weeks to get used to these new hearing aids, and that it is easier for someone to adjust to new hearing aids if they have never had them before rather than if they switch hearing aids–(which I agree completely, based off experience!)

On my new hearing aids, I have all these settings and options to learn and understand; right now I feel a bit overwhelmed! The strangest habit for me to get used to is the method of how I turn the hearing aids on and off. These are my OLD hearing aids:

The number “4’s” are the volume control. It was always on number four unless there was times where the background noises were excessive. Then I would turn it down. Also, the switch at the bottom is how I turned it on. Imagine a good seven years of turning the switch off and on…now I have to pop the battery in and out. Old habits are hard to break.

Here are my new hearing aids:

This is only the right hearing aid. Both are this new “chestnut-brown” color and the same size. See how the battery is popped out? That means it is off. It might take another seven years to get used to that method. 🙂 These are like R2-D2! These little “droids” make beeping noises when it changes to a different setting and a little song when it turns on. They are also set so that my functions change automatically. For example, when I put the phone up to my ear…it automatically changes my hearing aid into the new setting. I do have the option to have manual settings. The only one I think that I will probably set for manual is the setting which minimizes background noises. I have plenty of time before my follow-up appointment to think about all the settings and my preferences.

Going to sign off for the evening. This past weekend was a big turn of events in many ways, which leaves me right now very exhausted! This morning I thought of Matthew 11:28-29,

Then Jesus said, “Come to me, all of you who are weary and carry heavy burdens, and I will give you rest. Take my yoke upon you. Let me teach you, because I am humble and gentle at heart, and you will find rest for your souls.”

 Off to make tea, then enjoy some quiet moments reading before I fall asleep. More to come…

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Filed under Adjusting to NF2, Muffy