Tag Archives: sunsets

Walking with my Raincoat.

I’m looking for a friend to hold the door

It’s cold outside when I don’t know where to find

A sheltered place secluded from the race

Of this old life

It is rainy here. Gray, misty, windy. Reminds me of this past month. Seems every turn had bad weather.

As I walked out in the downpour with no raincoat

I was soaked down to the bone from head to toe

Without my raincoat, anywhere I may go

I still get wet somehow

And yet right now as I sit and glance out the window…blueish clouds set in a faded yellow sky. I can’t help but smile.

I found a friend. He’s with me to the end.

He promised me that He would not forsake His own

And when a promise never ends

It can only mean one thing…it’s from above

The sky is now pale pink. The reminisce of hope in the storms.

Now I walk out in the downpour with my raincoat

After all is said and done, He’s still the One

With my raincoat, anywhere I may go

I know I’m alright

Reference: “Raincoat.” Downhere. Word Entertainment, 2001.



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Filed under Adjusting to NF2, Family Times


I know refreshed[ness] is not a word, but I would like to take today and just think that it could be. It is sort of the present tense of being refreshed…although the (ed) on the end of refresh technically makes it a past tense…thus, the (ness) is my excuse to wrap it back around to the moment. Make sense? LOL. I don’t think it does, but I just wanted to say: today was refreshing!

After lots of waiting and loads of phone calls, things are starting to take shape. Monday was a fun day for me. My older sister took me to my MRI and since we had a few hours to spare in between the labs and the MRI, we enjoyed ourselves while just sitting there in the Liberty Children’s campus hospital. We even got in some Starbucks time since my MRI was delayed an extra hour. Probably the Starbucks, but I did not sleep in my MRI…rather I watched Finding Nemo. I should pick a more serious movie next time as I was having a hard time keeping my breathing calm due to inner laughing. But it was worth it…especially since I had just quoted it last week on my post. They even put captions on before they started the movie. That was a treat! 🙂

Otherwise, things here up until today have been mass phone calls–mostly with insurance and figuring out why there was a hold on my Lovenox blood thinner shots. It made a great hassle, but I did none of the talking on the phone…so I am thankful for my parents and the pharmacy people who fought that battle for me. God knows the timing and the need. And today everything went through, just in time as my last shot otherwise would have been in the morning. Although it did come with a cost…and I mean that in the literal sense.

I still have no “set” time for the surgery, but everything is aiming for Tuesday. It might mean that I go in Monday night and then wait around Tuesday for an opening, but we will most likely hear word of confirmation either tomorrow or Friday. So for sure, not this week as we first thought. I do go down to Children’s tomorrow to meet with my Anesthesiologist for pre-surgery talks and such. This will be a good thing. I don’t have any questions other than the obvious, “You will keep me sleeping the whole time, right?” 😉 But it will be good to let them know about my fear and the last surgery–even though I have complete peace about it overall.

But now I will tell you why my today was so refreshed[ness]! Because I got out of the house! I drove myself around and did errands; even got in some reading time at Barnes and Nobles; and saw a lot of co-workers I know well from my old work while shopping there. I did just as much talking as I did shopping. 🙂 All in one days work! And to finish the day, this:


Just gorgeous…and so unexpected after a whole day of gray skies!

What a day! 🙂 I am SO THANKFUL this time around that I have no driving restrictions, physical therapy or walking with canes in my way. It makes the “independent[ness]” of everyday things seem normal…like I don’t even have a blood clot. And I know that is God’s goodness. And for that, I just am so thankful! 🙂

“Oh, taste and see that the Lord is good!” Psalm 34:8a


Filed under Adjusting to NF2, Hospital Trips, Paintings

The Master Painter

This week I have been spending much of my time painting. The Yellow Springs “Art on the Lawn Festival” that is approaching on August 11th. I am getting excited for the event, but in the next two weeks I also have a lot of details to figure out with the booth set up and paintings. I am so thankful for my family allowing me to take over the basement with my projects. My dad even put in a fluorescent light in a corner of the unfinished part, so I can paint my big paintings. Yes, HUGE. Well, they could be bigger, but for right now they are the biggest I have ever worked with, meaning the boards being almost as tall as I am…that I consider pretty big. 🙂

A few things I have learned the past few weeks of painting: Artists keep an open mind (explore possibilities); Artists learn from others and artists do not procrastinate. Also from personal experiences: Artists do not talk with their hands while holding a paintbrush. 🙂

My family sees all my paintings. I have had paintings I consider duds, but that is where my family sees potential in them. Some like today, needed help! My mom and sister offered a few suggestions of how to make the painting better…then my dad came in and made a few comments, so I fixed more things. As I was finishing, I got paint (unknowingly) on my hand that smeared the bottom of the board. I had to redo the whole bottom half. I spent hours on this one piece. After finishing, I took a small break then headed back to work on another. But then it hit. Just this wave of fatigue. It felt like being back at college during finals week. I caved and took a nap.

As I was cleaning up for the night, I noticed a beautiful sunset out the window. I grabbed my camera and rushed outside just as the colors were peaking through the clouds. I realized that my painting is so small compared to the sky–God’s canvas. He is the Master Painter. I stood in awe of His work, His beauty and His majesty.

The heavens declare the glory of God,
and the sky above proclaims his handiwork.
Day to day pours out speech,
and night to night reveals knowledge.
There is no speech, nor are there words,
whose voice is not heard.

Their voicegoes out through all the earth,
and their words to the end of the world.
In them he has set a tent for  the sun,
which comes out like  a bridegroom leaving his chamber,
and, like a strong man, runs its course with joy.

Its rising is from the end of the heavens,
and its circuit to the end of them,
and there is nothing hidden from its heat.

Psalm 19:1-6

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Filed under Family Times, Paintings