Tag Archives: strength

The Art Show

Last week, we–as a family–headed down to Cincinnati for an evening of fun. First stop was a run-around through Ikea (that place is like a corn maze!) with the intent of finding a reading chair for my room. The hunt turned out quite successful as we left with a small recliner-style chair loaded in the back of the suburban. It is a simple, but lovely black chair and it has already been well used! We also went to Jungle Jim’s–the coolest international market around! We all ventured to our favorite places around the world in search of goodies. My focus was the variety of teas: Papaya and Passion Fruit black tea from the Asian section and herbal teas from the England section–Raspberry Cream Caramel and Tangerine Almond.

We then headed out to the Clifton Cultural Arts Center for the art show in which I was a participant, with collaborating artwork and two of my own paintings. Although I barely missed meeting with the three girls that I had been in Skype contact with over the previous months, I did have a chance to meet the two professors–Jenny and Sarah–and one other student from their class. The collaborating watercolor cards (that I started) were not yet complete, so I look forward to seeing the outcome when the girls send them to me in the mail; the painting canvas, however, was finished and on display. Because I had only started the canvases, seeing the outcome didn’t feel like I had any part in the project, though I did. A very strange and new experience, because I still feel as though I make art thinking inside the box…a very traditional view of art I guess. IMG_4913

IMG_4912

IMG_4932 Jenny, me, Sarah

IMG_4916 My own paintings: Clematis in Full Bloom and Fire and Ice

As I ended viewing the art exhibits around the room, I had a chance to talk more with Jenny about the class, art experience and purpose of this particular show. I had noticed a theme: much of the art descriptions discussed around the area of cancer or other life-threatening traumas–the pain, emotions, questions, fears, doubts, hopes and dreams, survival. Jenny mentioned that she had encouraged the students to think deeply of these things and portray them–because we are all affected, whether you are the one facing the trials or it is someone else you know. Art is a medium to express these different side-effects of disease.

One art set was a participant project where cards and pens had been placed on a table. You were invited to write an encouraging letter to an anonymous adult cancer survivor or patient. (Read about full project here: The Mandala Project.) I locked my walker so I could sit at the table and picked up a blank card. At first I didn’t know what to say…I get a lot of encouraging letters, sometimes even from strangers, but here I sat speechless for a few minutes. I finally started just by saying my name and that I didn’t have cancer, but a rare disease with tumors. After my first introduction sentence, thoughts just started to come…

I concluded my note by mentioning strength, because, let’s be honest…whether it’s cancer, NF2 or another disease, any can initially wipe out your strength–physically, mentally and emotionally. I have been there. I still am there. And it is when you cry out in your uttermost weaknesses, that God answers in His fullness of strength…in ways you never anticipated, hoped or dreamed.

Likewise the Spirit helps us in our weakness. For we do not know what to pray for as we ought, but the Spirit himself intercedes for us with groanings too deep for words.

Romans 8:26, ESV

4 Comments

Filed under Family Times, Paintings, Uncategorized

Running the Race.

Last week, I finished Kathy Van Riper’s autobiography called, A Race Worth Running. A friend had given me the book as a birthday present last year and I put off reading it for obviously a good year. I am not sure if that was God timing, but I think I got more out of it now–being a year later–as I have been through a bit more experiences in my physical body, such as the blood clot. I was so emotional reading the book that after I finished I was talking with my mom and just started crying (a variety of things), but I pointed to the book on the couch and said, “I don’t know why this book has made me so emotional.” Mom looked at me and said, “Probably because you can relate to what she went through.”

I thought about this. It is probably true. If you compared my life to Kathy’s life, there are some extreme differences: she was married, had two kids, battled an extreme case of breast cancer for ten years, and lived in CA her whole life–and yet we also had similarities: We both loved running (I can’t physically anymore, but love walking!); we both had treatments on the same chemo called Avastin (although she went through ten other different chemo treatments; I have only been through two.) We both had a blood clot with all the blood thinner shots and pills that follow; we both lost our hair; we both had radiation; we both were (and I still am) supported by an amazing circumference of family and friends who love endlessly and share support during the good and bad times; we both had to switch hospitals and doctors after years of care offered by another one; and we both have faith. Kathy’s faith is now complete. I am still on the journey.

Kathy’s “life verse” was Hebrews 12:1-2,

Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, 2 looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross, despising the shame, and is seated at the right hand of the throne of God.

I put in bold the phrase that she quoted most often in her journal entries that were at the end of the book. Kathy was a runner. Unlike myself who ran cross-country in high school but hated the races, Kathy thrived in races–anything from 5k, 10k to marathons. Whether you run or not, running as if in a race is almost the strength and perseverance mind-set for life: “[Forgetting] what lies behind and straining forward to what lies ahead, I press on toward the goal for the prize of the upward call of God in Christ Jesus.” Philippians 3:13b-14.

When I ran cross-country in high school, training was what got me through the races. For training, we would run on a variety of things during the week: grass, sidewalks through town, and other times, run up the mountain. I remember this one place…not quite sure where exactly in the mountains…but all of a sudden after you “warmed up” running the road, it just turned into a straight shot up the mountain. Rocks everywhere, so steep. It was literally a “breath-taking” view! 🙂 Coach always encouraged us to never stop. Never. So even though I was bringing up the rear end of the team while running slower than most people’s walking speed, I never stopped. After you got over that huge steep hill, things leveled out. Sure, it was still a mountain, but it was more like the hiking paths and less gruesome. Even after all this training, sometimes during the races I would want to give up. But then I would remember and say to myself, “Pull yourself together. You trained harder than this.” And I would not stop. Mental determination. The finish line was my goal. And that was the best part, because as you near the end you start to hear the cheers from everyone at the finish line. You pick up the pace, knowing that the finish line was just ahead. You forgot about the rest of the race…how much pain or how many people passed you. You strived to the end with all strength left in you. The verse that was so special to Kathy fit her life–her personality, her faith, and her race against cancer. The common phrase for people who have died from cancer is, “They lost the fight.” Indeed, our lives are worth fighting for but after reading Kathy’s book…I would not say that she lost the fight. Rather, she finished her race.

“Pressing on towards the goal”–I have shared Kathy’s favorite verse. I would like to share with you now my favorite verse. It is from II Corinthians 12:9-10,

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.  For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.

I had started running in the 7th grade…slacked off here and there, and in college, I started going to the gym every night. Not much kept me from the gym each night in college. I think it was my own way of “pressing on” during those times. I loved it. Something happened after I graduated, I stopped exercising every night and lost a little determination for a bit. I lived close to some different parks in my neighborhood and started walking there. I loved seeing the season changes and talked to God while I walked a few miles. My old job was also connected to a mall which had an indoor mile lap and I would often walk during my lunch breaks. Please understand me when I say this…as this pertains to my life and mental determination: When I either give up exercising, or can’t exercise from health reasons, I see a change. Like my attitude changes about how I see things in life…big struggles seem even harder, and even little things seem so hard. I told my mom about Kathy’s life during our conversation that night I finished the book–how she would go on mile runs a few days after chemo treatments. I said, “I don’t think I could do that,” as if it made me feel guilty for not getting out for walks lately or getting a few other things done that were stacking up in my room (which it sort of did). Mom said I didn’t have to. We were all made different.

Then I thought back to times in Denver. I worked Thursday-Saturday eight hour shifts. The weeks of chemo I worked Thursday, chemo Friday and then back to work Saturday-Sunday. Regardless of how much I tried to talk to work about changing this schedule, it never did. For months this happened. I think that is where my favorite verses really set in…”When I am weak, then I am strong,” because it was almost my reminder of my semester in college when I was on chemo pills. I don’t know how I got out of bed then, or on the weekends of work after chemo. Definitely not on my own…but on God’s strength.

The thing is, most people look at me and say the exact thing of what I said about Kathy’s life, “I don’t think I could do that.” And I would tell you, “You don’t have to. We are all made different.” God gives me strength to endure, just like he gave his strength to Kathy. He gives it according to our need. I think that is what makes life so special. We all have our own race–our own life worth running…enduring through pain, encouraging others and in return receiving it, rejoicing with those who have crossed the finish line, and striving for what lies ahead.

11 Comments

Filed under Adjusting to NF2, Books and Movies, Family Times, Hospital Trips

Endurance

Today was my second session of Physical Therapy. I go six weeks, twice a week. The goal: to help bring function back to my left leg by strengthening the muscles that have weakened from the blood clot, and to help stabilize my balance as best possible. Overall, PT repeats, “To build your endurance.” Tuesday was my first session. The whole time was used to see my body condition in the physical sense–things I can do well and things that I need help with during the sessions. It was mostly stretching and holding the pose for thirty seconds sort of exercises, but by the end of my 45 minute session, I felt like I had just completed a marathon! I came home and slept for four hours!! Today’s session, we went into the actual stretching exercises that they want me to start at home. It was more physically challenging…required more endurance.

My PT set me up on a step machine (not sure of the actual name, sort of like a stationary bike in which you are “stepping” but sitting down). As I was finishing my six minutes on the machine, I noticed a poster on the wall over to my right. It read, “A walk of a thousand miles begins with a step.” I thought that was a great saying to put in a PT gym. Here people come to regain what they have lost…sometimes even just their first step. The greater picture is that enduring the hard work, results will follow–even if it seems miles away. I remember running cross-country in high school. I was not very fast–I do not have a long stride–but every training made me stronger, not just physical but the mental endurance. We would train a few days a week on different terrains: grass at the park, running the cement streets, and our not so favorite–hills and every so often, a mountain. Yes, you read that right–MOUNTAIN!!! Talk about endurance! I am not a competitive person, therefore, I did not like the races, but during the races is when I felt like my training and building up my endurance had paid off! I never stopped, even in pain, and whether or not I came in last–which most often I would–the most important thing above all else is that I finished and I did not give up! That is what I call endurance.

This summer is the Olympics in London!!! YAY!!!!! More to come regarding that but the whole aspect of training and endurance reminds me of when we saw THE Olympic Stadium in Athens, Greece. What a sight to see!

There it is! Where the Olympics first began, well actually the first were held in Olympia (hence the name). Very fascinating history about the origin: http://www.greecetravel.com/olympia/.  The point–they have been around for a LONG TIME! Imagine those first games! 😀 All the strength and endurance, for what? Honor and a sacred olive branch (or wreath).  Enduring for honor! I remember my professor telling us that if a contestant did not win the olive branch, they did not return home…the honor was lost. Can you imagine how intense that would be?

The time we spent at the Olympics arena in Athens. I was reminded of what Paul says in I Corinthians 9:24-27,

Do you not know that those who run in a race all run, but one receives the prize? Run in such a way that you may obtain it. And everyone who competes for the prize is temperate in all things. Now they do it to obtain a perishable crown, but we for an imperishable crown. Therefore I run thus: not with uncertainty. Thus I fight: not as one who beats the air. But I discipline my body and bring it into subjection, lest, when I have preached to others, I myself should become disqualified.

And again he writes,

Not that I have already attained, or am already perfected; but I press on, that I may lay hold of that for which Christ Jesus has also laid hold of me. Brethren, I do not count myself to have apprehended; but one thing I do, forgetting those things which are behind and reaching forward to those things which are ahead, I press toward the goal for the prize of the upward call of God in Christ Jesus. (Philippians 3:12-14).

There are times when running the race is hard!!! And unlike cross-country races, sometimes I give up because I cannot see past the wall in front of me. But in everything there is hope: Every step towards the next thousand miles, I can go with confidence because, “I can do all things through Christ who gives me strength.” Philippians 4:13.


Here are some other websites about the ancient Olympics:

http://www.olympic.org/ancient-olympic-games

http://en.wikipedia.org/wiki/Olive_wreath *I like the story in this one. 🙂

Leave a comment

Filed under Adjusting to NF2