Tag Archives: accommodations

November 14, 2013 · 8:10 pm

My Father’s House

Last night I was finger-poking a few emails at the kitchen table. Mom was gone and Dad had gone out back to his workshop. I was not surprised to hear his footsteps come in a while later, but was caught off guard by his excited bounding around the kitchen entry way and motioning me to follow him with a big smile on his face. Doing my best to make haste in following him towards the garage door without falling, I still am clueless as to what is going on or what I should be expecting to see.

Dad motions to go down the garage stairs and then does so himself. As he nears the bottom, I start to make my first step and grab the railings out of instinct. “OH WOW!!!”, I blurt out as I look at Dad who is all smiles at the bottom of the stairs. I look back at the new railings (attached to the old ones which are just huge wooden, flat beams). The new smaller, circular handle railings were perfect! Fixing the railings on these stairs has been on the top of my OT list, as for starters…I am serious I have “stairophobia”: my own terminology for, “Mel is afraid of falling down the stairs.” I even freak out on curbs. Going up is not a problem…just down. So the garage stairs ending in concrete…I just loathed.

Back in high school or college, if you asked me where I saw myself in five or ten years, you would never have heard an answer such as, “I can see myself  being a disabled and unemployed single adult living with my parents.” I also don’t think I would have ever mentioned living in the Midwest, painting or writing a blog either. Everything I said (because I know I did have the dreams like being married and having a high status corporate job) or would have said–would definitely been the extreme opposite of what I live today. I still have dreams and hopes for the future–they are now just different…and it has been a long road of acceptance to finally realize that home is where I need to be.

After my first DVT, I moved back in with my parents: and I was NOT co0l with the situation. I tried everything to help my helpless case but to no avail. After a few months, I decided that if this was going to be “home” until I bounced back on my feet, then I had t0 make my room as “my room.” We got my bed in and Mom helped me arrange so I had a bookshelf. It felt more cozy and life went on…about the time I have a few good possible apartments to tour, my second DVT hits. It all went down from there. It wasn’t until June of this year that I talked with my Dad: “I guess I should stop apartment hunting, huh?” One look from him confirmed my answer and somehow that is when full acceptance of “living at home” settled in…and I had a peace about the situation.

The typhoon that recently struck the Philippines, leaving horrific conditions and deaths, has been on my mind and in my prayers for those it has affected…for those who lost everything that was considered “home.” My heart goes out to them and it has caused me to see, yet again, the many blessings that flow into my life each day. I have never experienced a typhoon or hurricane, flood, fire, earthquake, robbery or forced to leave my home. The most I deal with is the privacy boundary line between my parents and myself–but to scale of the others, it seems so small.

As I made my decision about no more chemo and putting the AFO braces on hold, I mentioned to my Mom that I just wanted to live with no extraness until that was no longer possible (i.e. when I really can’t drive on my own, need OT help in getting a shower or having to use a wheelchair.) As I continued to talk, I got some tears, but was not sad. They were reaffirming tears: My physical body is temporary, just like this home in which I live…it will one day be made new. I have accepted that just as I accepted the fact I know live with my parents. The future is unstable–ask me where I see myself in five or ten years and I think you would just get a blank stare. I don’t know my future plans, but I know where I am headed–where my real home is…and that gives me hope. Yet another reason to have a heart filled with thankfulness.

Don’t get lost in despair; believe in God, and keep on believing in Me. My Father’s home is designed to accommodate all of you. If there were not room for everyone, I would have told you that. I am going to make arrangements for your arrival. I will be there to greet you personally and welcome you home, where we will be together. You know where I am going and how to get there.

John 14:1-4 (The Voice)

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September 24, 2013 · 11:57 pm

Salad bar and pizza toppings

This month, my big canvas paintings have been hanging in a pizza place, called HaHa Pizza, in Yellow Springs. I have only eaten there a few times, but I have never been disappointed. They offer pizzas of all sorts; you can get your pizza on homemade wheat crust (my favorite) and load up just about any toppings for your slices (I haven’t tried eggplant on mine yet…maybe next time I will be brave.) If you feel like you forgot something, you can just head over to the salad bar and choose from all the fresh and local toppings offered there. I think most people around here agree–the salad bar gets five stars!

Yep, HaHa Pizza adds a few more reasons to my list of why small towns offer greatness: Friendly workers, local art, laid back atmosphere, mustard yellow walls (ok, that sounds weird but it adds character and it is one of my favorite colors). 🙂 At any rate, it has been my first time displaying my art in Yellow Springs, other than the art shows. I am thankful for the opportunity I have had this month at HaHa Pizza. I hope to get the chance to work with them again in the future.

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My Home Care OT reminds me of salad bars and pizza toppings. Life otherwise would be plain cheese or standard greens. I did not want to start OT at first. For my first session, I presented a lengthy list of things I can’t do and things that are almost to that point. My OT set out to work and today we went back over the list…we had solved almost all of the problems by getting the correct accommodations to give me a boost for continuing to live as independent as possible.

I still have a few items that need to be ordered: a new button loop as mine broke; a zipper pull and zipper key loops that would attach to my jackets I use often; more utensils with rubber grip handles; tylastic shoelaces; a fingernail clipper board (it positions and holds your fingernail clippers for you if you cannot); and removable handles for holding glass cups. These are things that I feel I would benefit from as my hands continue to weaken.

During my OT sessions, we talked about many alternative ways to do things. For example, there was a lamp in the living room that I could no longer turn on or off. My OT brought in this remote control switch that is actually for your Christmas tree lights and set it up on the lamp. Now, when I need to turn the light on or off, I just click a switch. Genius! You would assume we would have thought of that on our own. Sometimes a fresh perspective is what is needed.

She also helped me solve my problem of tearing open things (like bags of food), most zip lock bags, and turning book pages: rubber finger tips. 🙂 Next week is my last OT; she is bringing more of these but a larger size so that I can try to wear one on my thumb as well…this may help when I put in my right hearing aid. We also solved my holding a pen problem with new rubber grippers as my pen holder (yes, was lost but found) was giving me more frustration than assistance. My handwriting is still wobbly, but more legible. 🙂 And last, because it is my favorite…a handle for my Tervis, as I use it more often than mugs (morning coffee). The handle allows me to use all my fingers to grab hold, where mugs I can only use two fingers, and it gets interesting (plus a Tervis has a lid reducing spills!)

Funny part is, these things are always at the store…they are nothing special, unlike the specific ones I have to order. But if you are not aware of them or seeking them specifically, they can be overlooked…like so many delicious salad bar or pizza toppings. Home Care OT helped me become aware of this–that living with weakness is livable.

And my God will supply every need of yours according to his riches in glory in Christ Jesus. Philippians 4:19

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September 10, 2013 · 11:33 pm

Like Plain English

I have never been a Shakespeare fanatic. Mostly because I never understood the language of his plays. In high school, I read and watched a few plays (movies) in English class and did the homework discussion questions but always seemed to grasp the scenes differently than others in the class.

“So what is going on in this scene here?” Or, “What does this character mean when he says this?” I would sit and hope that I would not be chosen. I didn’t want anyone to think that I was not understanding.

Don’t get me wrong, I didn’t have this problem all the time–only when discussing Shakespeare or poetry (like his Sonnets.) I love books, English class, creative writing and diagramming sentences. However, if I made a list of my favorite classic authors of all time, Shakespeare would not be in the top five. But I have discovered something that is helping me appreciate the works of Shakespeare. It is called, “plain English language.”

Barnes and Nobles could just very well be what I consider a great hangout place. It is almost like a huge library where you have freedom to chat and walk around with your coffee. I often go in to the local store just to look around at the bargain books, read a few children books and see what is newly released. In this meandering a few months ago, I headed towards the playwright section. Mom and I had watched James Stewart’s old film, Harvey, and I knew it was based on the play of the same name by Mary Chase. I wanted to see if there was a copy of the original play. There wasn’t, but I found the play Our Town, by Thorton Wilder, and skimmed through the text remembering seeing the play in the Creede Repertory Theatre and crying during the final scene. Excellent play.

What fascinated me the most in this section was the amount of Shakespeare plays available. I think all (even his Sonnets) were on the shelf. I didn’t bother to skim through them, but picked up this instead:

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It is genius! This morning I sat at Beans-n-Cream sipping my Pumpkin & Spice coffee and found that I was not only enjoying the play, but understanding the play. Shakespeare is on the left page–plain English translation is on the right page. Maybe this is considered a “cheat sheet,” but in my opinion…if it allows me to understand the text of someone who is considered to be one of the greatest writers in the English language, then it is worth the modern translation.

My everyday conversations can parallel much to that of a Shakespeare play. As much as I do my best to lip read, words and phrases constantly get mixed up; I miss context or transition clues to next conversation; and I sometimes just say, “I have idea what you’re talking about.” Lately, if it really important– after attempting fingerspelling, but obvious that I still am missing one or two words–my parents will write it down. Like plain English and I understand.

When it comes to translation in communication, I think I use a lot of different methods: sign language interpreters, text messages, closed captions on television or movies, and a Captel service when talking on the telephone. After my hearing dropped and I returned the Phonak Cros, I decided a better investment would be a Cap Tel landline phone. Up until this point, I have been using an internet caption service through Sprint. It was free and accessibly convenient in college. But it is getting more inconvenient: To make a phone call, I would have to start my computer, get on the site, log in, put my number in and then the person’s number who is receiving the call, press enter, wait for Sprint Cap Tel to call me, press send and finally be set up for the conversation.

It is not like a TTY or landline phone where captions are fast, accurate and promising not to cut out of a conversation. (Believe me, many times during chats with credit card companies gets frustrating as you never get the same representative.) I will say that I found humor though…because the captions are based on voice recognition, there were many laughable “read between the line” moments. I can relate–happens to me in real life daily.

But these woes are no longer my concern. I am now the owner of a Cap Tel captioned phone!!!

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It works fantastic and I finally understand the whole phone conversation! It provides accuracy and convenience (especially safety for emergency phone calls). On the bottom of the screen there are little boxes…the left is mine and the right is the person I am calling. When talking, the box flashes, so I know when to listen and when they are done speaking. My box flashes too, and st often in red, which means I am talking too loud. Ironic, since most of the time people say I talk too quiet. This phone allows me to receive calls, make my own appointments, and best of all-talk to my grandparents (as well as other family and friends.) Out of all the new accommodations made recently and still to come–this is placed in the top five favorites, perhaps even as number one.

Most people do not listen with the intent to understand; they listen with the intent to reply. ~Stephen R. Covey

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July 31, 2012 · 11:03 pm

Accommodations For Normal Living

I did something yesterday that I have not done in a while years! I ordered to go…DRIVE THRU!! A big deal considering every time I want to grab and go–I have to park, walk in, order, wait, then go. When I am with family, things are pretty normal (minus a missed ordered fries or no sauce); or if I am driving and my sister is in the passenger seat, she yells past me and then I just pay and pick up at the window. But me alone…ordering drive thru most often is like talking on the telephone (even with my internet captel)–lots of communication problems. I think most people would say ordering drive thru is hard for anyone, but it makes it even harder with profound hearing loss. Thankfully, most now have big screens so you can see your order.

The most common misconception I have about my hearing loss is that I cannot hear anything. True…when I have no hearing aids in. My new hearing aids give me a lot more power and range to pick up on sound, but even still I think my hearing is slightly decreasing. I have a hearing test next week with my MRI/doctor appointments to see how things are going.  People at work ask me if I hear voices. I do, but if I am not reading lips, then I have no idea what you are saying. SO, I have to give credit…it was like a “cheat sheet” drive thru. I got off work around noon, aka, lunch hour. I was exhausted but had a coupon for a free Chic-fil-A hand spun milkshake. They seemed to have a really busy noon hour and since I could not find a parking spot, I ventured in the drive-thru lane. They had long lines so they had set different workers at certain points to take your order and punch it in, so by the time you got to the window, you had already paid and just got your order. Brilliant! 🙂 But I still count it as official drive thru…because I never left my car!

Friday, I had an appointment to discuss different options for my phone upgrade. I am not interested in an iPhone or anything big with touch screens, because it is hard for me to hold and text. In discussing my needs, we are focusing on phones for seniors. Most common are flip phones with big T9 text keys. There are also ones that have ICE buttons on the top of the key pads, which for safety factor might not be a bad idea. We still have a bit of research to do with different things, but I think that type of phone is what I will possibly get. With my fingers getting so numb and loosing function…I am not looking for anything fancy but that covers my need. We also talked about getting a captel landline phone. That was a big factor for me in my apartment. My phone service was not always the best, and if I had an emergency, I just can’t call people. I have to turn on my computer, start my internet, load the address, log on, set my phone numbers, then hope the website runs smoothly and does not cut off my conversations (which seems to happen on my most important calls). It takes a lot of time. With the landline, I just have to pick up the phone and dial out. I think that might be an important investment–especially when I want to call grandparents. 🙂

We also discussed a lot of different options for helping me maintain my independence. It is my hopes to get into an apartment of my own again soon. It was a big shift going from living with roommates at all times to living on my own. I saw concerns that could have been problematic. Thankfully, my apartment accommodated for a lot of them, such as a strobe light on the fire alarm. But I think there are more concerns than just my hearing. I also fall a lot. I fell out of the shower a few times in college and in the apartments in Denver. Not that it will happen again, but I also think of when the blood clot hit. I was also in the shower. That event was actually very scary for me. It leaves me with doubts of being able to safely live on my own again. And that is why the appointment Friday was such a huge encouragement for me to understand that there are resources, accommodations and technologies that help make independent living (for as long as I am able) a safer experience. I am so thankful for that.

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