NF Awareness Month

Well, it came and went–May, as I forgot and was reminded yesterday–was NF Awareness month. It was also Autism Awareness month. I don’t find it necessary to tell you facts or stories of NF–you have already read my blog entries. So, I will end this NF Awareness month with something different–none of the talk, such as, “This is a side effect of medicine or tumor function;” But talk of living life with NF2–because, I will tell you plain, it has, is and will continue to change my life.

Once in a conversation with my friend Jess, we discussed our thoughts and feelings about the topic of researchers finding a cure for our disease. I thought about it for a long time and finally responded to her email, saying that I cannot imagine life without it. Please don’t consider me a strong person, because if anything, this disease knocks you down. There are more moments were I detest my own body, wishing that I was something more rather than being thankful for what I have–in other words, as my body continues to unwind, I feel left behind.

Yet looking back at the road thus far, I am aware that life has been filled with divine moments. Moments where God met me in my lowest state and helped me back to my feet, never leaving me behind. And so life continues–to the end, which is the beginning of Life.

He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.

Revelation 21:4

PS. I believe that God has given doctors and researchers the skills, resources and knowledge to help individuals suffering with illnesses, such as myself. Although at the current moment, there are no treatment options available for me, I still desire to walk with hope in the Cincinnati NF Walk, June 22nd, and support the further research of NF, along with those persons in which the research impacts through results, such as new treatments. If you would like to donate for this cause, there is still time: Team A Mile in Mel’s Shoes

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3 Comments

Filed under Adjusting to NF2, Paintings, Uncategorized

3 responses to “NF Awareness Month

  1. marcie

    Job 23:10, “I do not know the path YOU have for me, but when I will tested and tried I shall come forth as gold”.
    The Lover of our souls will continue to walk with us in this fiery furnace.

  2. Megan

    “And so life continues–to the end, which is the beginning of Life.” ~ Luv this quote straight from your mind:) XOXO, Megs

  3. Megan

    P.S. The whole chapter of 2 Corinthians 4 is an excellent read but this specific verse came to mind:

    “For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.” ~ 2 Corinthians 4:17 ❤

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