Early update…

Hey guys. Thank you for your prayers!

Last night was a bit crazy. Ready for one big run on sentence? ๐Ÿ™‚

We got here right around 8pm, check-in process got confused about the MRI order, waited a few hours in the ER (thanks Mandy for keeping us company) and finally got inย a very fast 20 minute MRI (amazing!); came back to ER and waited for results, got an X-ray of my stomach, got in some lab work, saw the ER doctor, got transported to a room upstairs at 2:30am; answered more questions, discussed issues at hand, got medicines; family left to hotel, got ready for bed 3:15am; had another lady come in and had me sign more papers, etc–got my port accessed at 4am, went to bed but woke up at 6am to take my medicine* (will explain); went back to sleep, but remember the nurse coming in to take vitals; more sleep but then was awake at 9am to take my morning medicines and my first dose of Mirlax. ๐Ÿ™‚ I should have gone back to bed, but I decided to eat breakfast; then nurses and people started coming in so in the midst of this, plus trying to finish breakfast, I had ย a bowel movement and I just really wanted to celebrate. ๐Ÿ˜€

So, real fast, the MRI showed no big changes but the tumor in the spine at the base of my neck seems a little bigger, so they started me on steroids* to see if they can get the swelling to go down. I have also noticed a few new areas of numbness, pain in back and different places of pain spasms since my last MRI so they would like to take a look at this now while I am here and make sure that when I leave, I have the knowledge and medicines to help keep my body going.

I will be seeing some doctors from different areas today, to discuss and for them to evaluate. I am enjoying a bit of quietness now, and my family is here. ๐Ÿ™‚ I may or may not get home tonight…so I will just write when I get home.

Thank you again for your prayers and encouragement.


Filed under Adjusting to NF2, Hospital Trips

4 responses to “Early update…

    • mel

      Hi Ryan! Sorry I missed out on seeing you guys over the weekend, but I was thinking of you guys and hope you had a great time with everyone there! Thanks for the prayers. I am feeling much better compared to last week. I hope you had a nice New Year’s! Ours turned out pretty great, since U. Tom and A. Susan were here. ๐Ÿ™‚ Enjoy the rest of your week as I imagine the semester starts over again next week? Breaks sure never last long that is for sure! Hi to the family!

  1. Tanis Huebner

    Good to know you are finding out some answers! Thanks for the update!
    Aunt Tanis

  2. Hope they are taking very good care of you! We will continue to pray. We’re celebrating along with you about your little victory!! LOL. Love you.

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